Novel discovery creates a new hope for families
The DDX3X Foundation was formed to raise awareness and to find a treatment for the recently discovered mutation of the DDX3X gene, which primarily affects young girls and their intellectual development.
A caring home on the web
The website serves as a safe space for patients, providing reliable information and answers to common questions on the DDX3X mutation. We designed the site to be super easy to update, ensuring the foundation's growth is not tethered to our expertise.
There’s also a blog and a private Facebook group where parents can share stories about their children, bringing improved understanding of the condition, and inspiring families to know they aren't alone.
We used fun and playful iconography to communicate and connect with the mutation's demographic.
Partnering for good
Because the organization is mostly composed of parent-volunteers, many of whom have full-time jobs, we worked not only as a service provider, but also as their partner that took care on the things they didn’t have time to do. We pitched in to help manage the website and the registry.
The story so far
While the foundation’s work is only beginning, finally having a strong identity, as well as the means to bring together parents and have them tell their children’s stories, have delivered encouraging results in raising awareness about the DDX3X mutation. The website is currently one of the most comprehensive resources available on the subject today with its blog and patient registry.
If you’re a non-profit looking to tell your story in new and engaging ways, our team at First Ascent will be more than happy to help. Please contact us today and let’s get the conversation started.